Me (on the left) at my besties’ Wedding last year (2016)
I have been off work on and off for the best part of a year with my mental health.
It was all triggered by first one, then another Consultant telling me there isn’t a fix for my chronic back pain, and that I will be in pain for the rest of my life.
As my pain is caused by arthritis and two discs in my spine that have disintegrated completely, the condition will get worse as I get older.
I have to walk with a stick currently, and I don’t know if I will end up in a wheelchair by the time I am 50.
I am 34 now, single, living alone and I feel like my future is a black hole of uncertainty.
People say, “Well everyone’s future is uncertain, anyone could end up in a wheelchair.”
Yes that is true, but the chances are more in your favour that you won’t, whereas they are more in favour that I will.
Not to mention the fact that regardless, I will spend the rest of my life – barring a miracle cure for arthritis – in pain.
I am not able to walk far at all and any movement causes me a lot of pain, even with the morphine and pregablin painkillers I am on.
Obviously the news hit me pretty hard. Until that point I had hope that there was something the consultant would be able to do. I felt like my hope had been taken away.
Consultants in my experience care only for their specific part they are working on. For example, I had injections into my spine, (anaesthetic and steroids),and they didn’t work. The consultant wondered why I was sobbing hysterically when he told me there was nothing more he could do, (despite the fact he initally offered at least 4 treatment options we could try).
Well, the reason was that not only had he just told me I would spend the rest of my life in excruciating pain, but I realised, that, or felt that, my life was effectively over.
After all, who would want to date someone who is constantly in pain, hardly able to walk, constantly exhausted, so spends all of their time sleeping?Who would want that? I can’t go on typical dates. I have to plan everything ahead if I go anywhere. It’s not exactly an inviting situation to enter into.
That also meant in my head that I would never have children, probably never get married and would end up dying alone and in pain.
That all flashed through my head as he told me this, that and the fact I am struggling now. I can’t manage the housework, I can’t manage to cook properly (which I love), I struggle getting dressed and having a bath (I don’t have a shower), I am struggling at work, how long will I be able to work? How will I afford to live when I am forced to stop working?
All this went through my head in true anxiety sufferer style, and he sat and asked me why I was crying!
I have been working really hard trying to come to terms with this. It has helped talking to people in the same situation on Instagram. I really could do with a therapist who specialises in people with chronic pain. Even if there was a support group for people my age being told they are disabled. I have yet to find one and my doctor didn’t know of one.
I have been mostly housebound for the majority on last year and this year so far because of this.
Depression hit me hard and my anxiety has been so bad, that at times I have been unable to leave the house for weeks at a time.
Occasionally I manage to get the courage to go out. Usually out of necessity.
My new anti-depressants have boosted my mood and lowered my anxiety levels, so when I have been well enough (see previous article), I have tried to get outside.
So, I am meeting my boss for coffee this afternoon. I am really anxious about it, but at the same time, I am looking forward to going out to one of my favourite cafés and catching up.
Thank you for reading
Love love love
The Faraway Girl 💜
This is me age 26 doing a photo shoot for my photographer friend 💜
Me around age 28 playing guitar at a friend’s acoustic gig.